Cystic Fibrosis and Other Childhood Lung Diseases
31 Cystic Fibrosis and Other Childhood Lung Diseases Elisabeth Potts Dellon, Jessica Goggin, and Elliot Rabinowitz Photo by David Myers Therapy An endless rhythmic beat A sort of faint knocking…
Sleep and Circadian Rhythms
22 Sleep and Circadian Rhythms Toluwalase A. Ajayi, Eric S. Zhou, and Valerie E. Rogers Golden slumbers kiss your eyes, Smiles awake you when you rise; Sleep, pretty wantons, do…
The New and Changing Landscape of Children Receiving Pediatric Palliative Care in the US: An Evidence Base Emerges
2 The New and Changing Landscape of Children Receiving Pediatric Palliative Care in the US An Evidence Base Emerges Bryan Sisk, Kimberley Widger, and Chris Feudtner I did then what…
Gastrointestinal Symptoms
25 Gastrointestinal Symptoms Kevin Madden and Margaret M. Mahon Digestion, of all the bodily functions, is the one which exercises the greatest influence on the mental state of an individual….
Hematologic Symptoms
34 Hematologic Symptoms Barbara Speller-Brown, Jillian Campbell, Allistair Abraham, Priyal Patel, Lisa Humphrey, and Jennifer Webb Overnight medication for these yellow eyes, tired of Sickle Cell taking people from their…
Anticipatory Grief and Bereavement
15 Anticipatory Grief and Bereavement Jennifer M. Snaman, Terrah Foster Akard, Sue E. Morris, and Lori Wiener I often say I have a hole in my heart and I can…
Practical Aspects of Palliative Care Communication
13 Practical Aspects of Palliative Care Communication Lindsay Ragsdale, Tessie October, and Caitlin Scanlon The right word may be effective, but no word was ever as effective as a rightly…
Respiratory Symptoms
24 Respiratory Symptoms Rose Sharpe, Megan Jordan, Raymond Barfield, Sarah Gall, Margarita Bidegain, Kristen Lakis, Renee Bartle, and Emily Layok Breath is the finest gift of nature. Be grateful for…
Relationships with Children and Ensuring Their Voices in Decision-Making
9 Relationships with Children and Ensuring Their Voices in Decision-Making Karen Ron-Li Liaw, Becky Lois, Julia McBee, and Erin Collins I do have a voice. So let me enjoy it…
Solid Organ Transplant
32 Solid Organ Transplant Timothy Klouda, Debra Boyer, Lynne Helfand, Michael McCown, Nicholas Purol, and Dawn Freiberger Every obstacle I have overcome Has made me stronger in some way And…
