Children’s Voices: The Experience of Patients and Their Siblings
3 Children’s Voices The Experience of Patients and Their Siblings Anna C. Muriel, Abby R. Rosenberg, and Barbara M. Sourkes Life is so strange. Sometimes you feel it’s like a…
Witness to Suffering: The Clinician Experience
12 Witness to Suffering The Clinician Experience Barbara M. Sourkes, Stephen Liben, and Danai Papadatou Look long and hard at the things that please you, even longer and harder at…
Prevention and Treatment of Pain in Children with Serious Illness
23 Prevention and Treatment of Pain in Children with Serious Illness Stefan J. Friedrichsdorf, Lauren Heathcote, Michael Sangster, Donna Eull, and Amber Borucki “There were little computers. And there were…
Prenatal and Neonatal Palliative Care
28 Prenatal and Neonatal Palliative Care Christy Cummings, Anne Sullivan, Lauren Cramer, and Renee Boss Having the baby was a surreal experience; it was entering a world of unknowns and…
Easing Distress When Death Is Near
27 Easing Distress When Death Is Near Debra Lotstein and Rachel Rusch Death is not the opposite of life, but a part of it. haruki murakami Introduction While in many…
Dermatologic Conditions and Symptom Control
26 Dermatologic Conditions and Symptom Control Kimberly A. Bower, Julie Good, Anke Reineke, Cristina Gordon, and Michele R. Burdette-Taylor Beauty is not in the face; beauty is light in the…
Family Experience and Relationships
10 Family Experience and Relationships Kim Mooney-Doyle, Meghan L. Marsac, Elissa G. Miller, Janet A. Deatrick, and Melissa A. Alderfer We all come from families. Families are big, small, extended,…
Advanced Heart Disease
30 Advanced Heart Disease Melissa K. Cousino, Chelsea Heneghan, and Elizabeth D. Blume She looks good today. . . . I actually said that to a visitor today. My daughter…
Children with Complex Chronic Conditions
29 Children with Complex Chronic Conditions Jori Bogetz, Christopher A. Collura, and Christy Torkildson Family Reflection A Parent’s Perspective The COVID-19 pandemic has impacted our lives in many ways. As…
Oncological Illnesses
33 Oncological Illnesses Sarah McCarthy, Kimberly A. Pyke-Grimm, and Angela M. Feraco I have loved [Catullus poem 101] since the first time I read it in high school Latin class…
