Dermatologic Conditions and Symptom Control
26 Dermatologic Conditions and Symptom Control Kimberly A. Bower, Julie Good, Anke Reineke, Cristina Gordon, and Michele R. Burdette-Taylor Beauty is not in the face; beauty is light in the…
Family Experience and Relationships
10 Family Experience and Relationships Kim Mooney-Doyle, Meghan L. Marsac, Elissa G. Miller, Janet A. Deatrick, and Melissa A. Alderfer We all come from families. Families are big, small, extended,…
Advanced Heart Disease
30 Advanced Heart Disease Melissa K. Cousino, Chelsea Heneghan, and Elizabeth D. Blume She looks good today. . . . I actually said that to a visitor today. My daughter…
Children with Complex Chronic Conditions
29 Children with Complex Chronic Conditions Jori Bogetz, Christopher A. Collura, and Christy Torkildson Family Reflection A Parent’s Perspective The COVID-19 pandemic has impacted our lives in many ways. As…
Oncological Illnesses
33 Oncological Illnesses Sarah McCarthy, Kimberly A. Pyke-Grimm, and Angela M. Feraco I have loved [Catullus poem 101] since the first time I read it in high school Latin class…
Cystic Fibrosis and Other Childhood Lung Diseases
31 Cystic Fibrosis and Other Childhood Lung Diseases Elisabeth Potts Dellon, Jessica Goggin, and Elliot Rabinowitz Photo by David Myers Therapy An endless rhythmic beat A sort of faint knocking…
Sleep and Circadian Rhythms
22 Sleep and Circadian Rhythms Toluwalase A. Ajayi, Eric S. Zhou, and Valerie E. Rogers Golden slumbers kiss your eyes, Smiles awake you when you rise; Sleep, pretty wantons, do…
The New and Changing Landscape of Children Receiving Pediatric Palliative Care in the US: An Evidence Base Emerges
2 The New and Changing Landscape of Children Receiving Pediatric Palliative Care in the US An Evidence Base Emerges Bryan Sisk, Kimberley Widger, and Chris Feudtner I did then what…
Gastrointestinal Symptoms
25 Gastrointestinal Symptoms Kevin Madden and Margaret M. Mahon Digestion, of all the bodily functions, is the one which exercises the greatest influence on the mental state of an individual….
Hematologic Symptoms
34 Hematologic Symptoms Barbara Speller-Brown, Jillian Campbell, Allistair Abraham, Priyal Patel, Lisa Humphrey, and Jennifer Webb Overnight medication for these yellow eyes, tired of Sickle Cell taking people from their…
