© Springer International Publishing Switzerland 2016
Brian P. Jacob, David C. Chen, Bruce Ramshaw and Shirin Towfigh (eds.)The SAGES Manual of Groin Pain10.1007/978-3-319-21587-7_3535. Chronic Post-inguinal Herniorrhaphy Pain: A Patient’s Perspective
(1)
Lichtenstein Amid Hernia Clinic, Department of Surgery, David Geffen School of Medicine at UCLA, 1304 15th Street, Suite 102, Santa Monica, CA 90404, USA
(2)
Icahn School of Medicine at Mount Sinai, Laparoscopic Surgical Center of New York, New York, NY, USA
Keywords
InguinodyniaPost-herniorrhaphy groin painInformed consentComplicationsNeurectomyMeshomaPatient experienceQuality of lifeIntroduction
Patient ZP is an acclaimed writer and columnist. We have asked her to share her story to illustrate the experience, frustrations, hopes, and fears from a patient’s perspective. Her story also demonstrates the importance of referral patterns and how physicians themselves should pay more attention to the skill set of their trusted referrals. These patients navigate a sea of doctors, studies, interventions, and surgeries often without enough guidance or expertise. Their difficulties finding adequate care turn lives upside down, and while we can usually ultimately make patients better, the road is long, and some lives never return to normal. It is a reminder for all of us to try always to do better.
Background
I am a writer by vocation but a dancer by avocation. As someone whose body is very important to her—not for vanity but for health reasons and a daily sense of well-being—any interruption in that routine has repercussions beyond the norm. Every day I do something—running, walking, hiking, Pilates, core conditioning, or dancing—to keep my body and my brain in shape. Once upon a time I was a Balanchine baby, but most recently, in the last six years, have been studying flamenco.
About seven years ago, I noticed a tiny bump on my lower right abdomen, barely visible, close to my pelvic region. I was not in any pain or discomfort, but after I noticed it grew ever so slightly about a year later, I pointed it out to my gynecologist in case it was a tumor. She checked it out visibly and said, “I think it’s probably a hernia so eventually you should go see a surgeon,” and she gave me some referrals. I waited almost another year. Every once in a while after I danced it would pop out slightly further.
My Preoperative Experience
Finally I decided to go see a surgeon. But instead of following the gynecologist’s suggestions, I asked my internist for a name or names. I wanted a female surgeon. My doctor gave me the name of a colleague, Dr. A (who, I learned later, was also a trusted friend). Dr. A examined me, ordered a scan, and reported to me shortly after that I indeed had a femoral type hernia and that it eventually would have to be removed. Because it had “infarcted” already, she said I would not be a candidate for laparoscopic surgery (which she did not perform). Dr. A said eventually it was possible that my hernia could incarcerate at any time, when I could be traveling or away from home, and it was best to nip it in the bud. It was left to me to decide if and when to do this open surgery, but I should not wait too long. Mistake number one.
I decided to get a second opinion, as I still had no discomfort but just the occasional tiny bulge. I got a second opinion from the suggestion of my friend who was a prominent vascular surgeon. I again asked for a female surgeon. My friend asked around and got the name of another respected female general surgeon. I went to see Dr. B, who looked at the imaging and agreed that it was a femoral hernia and that it eventually should probably be removed, but that there wasn’t any great urgency and I should do it within the year. Regarding technique, at some point, Dr. B told me that if I wanted to pursue laparoscopic surgery, a colleague, Dr. C, would be more experienced at that technique. When I called back to Dr. A, this surgeon opined that I was not eligible for a laparoscopic repair. My second opinion, Dr. B, did not push me toward a consult with Dr. C, an experienced laparoscopic hernia surgeon. Mistake number two.