Discharge Planning of Neuromuscular Patients with Noninvasive Mechanical Ventilation After Difficult Weaning from Invasive Mechanical Ventilation: From ICU to Home Care


Indications for NIV

Patient has chronic stable or slowly progressive respiratory failure:

 Significant daytime CO2 retention (>50 mmHg) with appropriately compensated pH or

 Mild daytime or nocturnal CO2 retention (45–50 mmHg) with symptoms attributable to hypoventilation (morning headaches, restless sleep, nightmares, enuresis, daytime hypersomnolence)

 Significant nocturnal hypoventilation or oxygen desaturation

The following conditions have been met:

 Patient has had optimal medical therapy for underlying respiratory disorders

 Patient is able to protect airway and clear secretions adequately

 Patient’s reversible contributing factors have been treated (obstructive sleep apnea, hypothyroidism, congestive heart failure, severe electrolyte disturbance).

The diagnosis is appropriate and may include neuromuscular disorders and other pathologies such as chest wall deformity, central hypoventilation syndrome or obesity hypoventilation, obstructive sleep apnea, etc.

Indications for invasive ventilation

Patient meets indications for NIV and has the following:

 Uncontrollable airway secretions despite use of noninvasive expiratory aids or

 Impaired swallowing leading to chronic aspiration and repeated pneumonias

Patient has persistent symptomatic respiratory insufficiency and fails to tolerate or improve with NIV

Patient needs round-the-clock (>20 h) ventilatory support because of severely weakened or paralyzed respiratory muscles (e.g., quadriplegia due to high spinal cord lesions or end-stage neuromuscular disease) and patient or provider prefers invasive ventilation


Modified from Make et al. [6]



A second mechanical ventilator and alternate power source should be available for emergency use in the home and at all care sites for patients who cannot sustain independent, spontaneous ventilation for >4 h [6, 7].




45.2.2 Criteria for Discharge to Non-ICU Facilities


New information suggests that the ICU environment is not needed for long-term ventilator care and may even interfere with optimization of functional potential. Patients requiring long-term ventilation may reach a state of relative clinical stability and not require ICU nursing or invasive monitoring. Furthermore, most, if not all, long-term ventilator-assisted patients require significant rehabilitation, and a multidisciplinary treatment plan focusing on rehabilitation is difficult to implement in an ICU.

Decisions on the most appropriate non-ICU setting for long-term mechanical ventilation must be individualized, but regardless of the site chosen, several essential criteria for patient stability must be met to ensure that discharge to an alternative site is safe, logistically possible, and cost saving. Clinical criteria for stability of a VDP transferred to a more intensely supervised site (such as a specialized respiratory care unit in an acute care facility) are less rigid than for patients discharged to an intermediate care facility (such as a rehabilitation hospital) or to a long-term facility or home.

Patients should also meet the criteria for respiratory stability. They should have a secure airway or be stabilized on a regimen of NIV. They should not have episodic severe dyspnea or desaturations, and oxygenation needs should be met easily without requiring high supplementary oxygen concentrations or high levels of positive end-expiratory pressure. Respiratory secretions should be manageable outside of the ICU environment, and variations in airway resistance should be minimal. In addition, the patient should not be undergoing frequent ventilator setting changes, other than for weaning, and should not require sophisticated ventilator modes.

For VDPs who are being considered for transfer home, additional psychological and social stability criteria should also be met to ensure that the patient presents a successful psychological adaptation to home and will have sufficient human and financial resources to sustain that success. It is also advantageous to have a family that fully comprehends the situation, is capable and desirous of participating in the patient’s care, and has sufficient support from an experienced multidisciplinary team of health-care professionals.

All members of the health-care team should evaluate these factors as they relate to the individual requiring assisted ventilation. Should the current level of care be continued? Or is an alternate site now appropriate? The patient and the patient’s family should be asked to provide input. The physician, as the individual responsible for ordering services and care, has a key role in this process and should determine the amount of medical care, monitoring, and intervention required by listing the needs and goals of the VDP.


45.2.3 Discharge Planning


The discharge planning process should ensure a smooth transition and safety in addition to an optimal outcome in the new site both when planning the patient´s discharge from the hospital to home and when transferring the patient from an ICU to non-ICU acute care. The patient’s goals and a list of patient needs, including personnel requirements and specific equipment, should be clearly defined. Guidelines for the discharge planning process have been written by the American Medical Association [8], the American Association of Respiratory Care [9], and a group of health-care professionals at a university medical center [10].

Successful transition of a VDP from the ICU to an intermediate or long-term care site outside the traditional hospital setting, particularly to the home, requires the collaborative efforts of a discharge team [11]. The team identifies all patient care issues that must be resolved prior to discharge and develops a plan to facilitate the transfer. The team, which includes the patient and his or her family, should be comprised of key hospital and community-based personnel, many of whom will play an ongoing role in the patient’s care once he or she is discharged. Discharge planning team members should include the following:

Patient and family: The most essential members of the discharge team, mainly transferring to home, are the patient and his or her family.

Physicians: Those responsible for the VDP’s transition and care are the pulmonary or rehabilitation medicine specialist and the primary care physician, who should have experience in the management of long-term mechanical ventilation. Because a VDP at home imposes a significant burden on the family, the physician should inform the patient and family of the burdens as well as the benefits of home mechanical ventilation.

Discharge coordinator: One team member should be designated as the coordinator who will serve as a liaison among the multiple disciplines involved. This person is usually a nurse, preferably specialized in pulmonary care, who will collaborate with a respiratory care practitioner.

The patient and their family need to learn skills about care, and on this way the role of doctors and nurses is crucial. The coordinator usually selects the specific types of home respiratory care equipment and ensures that the patient, family, and other caregivers have a detailed understanding of the equipment. When patients are discharged to long-term care sites, including the home, the home care company should be responsible for equipment maintenance and should also provide personal trained in NIV management when necessary. A social worker can also provide an evaluation of the alternate site as well as of community and home resources and support available for long-term care. In addition, beds, wheelchairs, and other general medical equipment must be provided or their acquisition facilitated (see the checklist in Table 45.2 for equipment and supplies required).
Oct 12, 2016 | Posted by in CRITICAL CARE | Comments Off on Discharge Planning of Neuromuscular Patients with Noninvasive Mechanical Ventilation After Difficult Weaning from Invasive Mechanical Ventilation: From ICU to Home Care

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