The Role of Patient and Family Education
Ahmad Elsharydah
Maria Michaelis
Postoperative pain continues to be a significant issue in health care, with a considerable proportion of patients experiencing severe pain after surgery and finding pain management at home challenging. There are several barriers to effective pain management, involving both patients and health care professionals.1 Patient education is a useful way to overcome many of these barriers. Addressing postoperative pain and how structured patient education, from admission to discharge, is important for patient experience and recovery. Patient education about postoperative pain, provided by skilled health care professionals, may improve postoperative recovery, potentially improving patient outcomes. In this chapter, we will explore the importance of patient and family education regarding acute pain management and its effect on outcomes, patient and family responsibilities for better pain control, realistic expectations from pain control, and patient/family engagement in recovery activities. Also, we added a section looking into special considerations for the pediatric patient.
Significance of Patient and Family Education for Acute Pain Management
Patient and family education regarding the management of acute pain after injury or surgery plays an important role in the successful pain control and expedition of recovery. Timely and appropriate education also decreases patient anxiety and worries about postoperative pain. One patient survey had shown that more than half of the patients surveyed were concerned about experiencing pain after surgery and that this caused some of them even to postpone surgery.2 The emphasis on the patient and family education is not new. In 1992, the Department of Health and Human Services published the Acute Pain Clinical Practice Guideline,3 which stressed the significance of patient and family education for acute pain management. The essential elements of pain education (shown in Fig. 12.1), as stated in these guidelines, include telling the patient the following:
Preventing and controlling pain is important to your care.
There are many interventions available to manage pain; analgesics (opioid and nonopioid) are the most effective in managing acute pain.
Some people are afraid of using opioids because of the side effects and risk of addiction. Side effects can be managed effectively with medication. The risk of addiction when using opioids to control acute pain is extremely low.
Your responsibility in achieving good pain control is to tell us when you are experiencing pain or when the nature or level of pain changes.
Complete pain relief usually is not achievable; however, we will work with you to keep pain at a level that allows you to engage in activities necessary to recover and return home.
FIGURE 12.1 The essential elements of patient and family education regarding the management of acute pain. |
It is good to set up goals for pain management during the hospitalization and after discharge. These goals are centered around the functional requirements during the recovery period after surgery or injury. Examples of the functional requirements are ambulation, physical therapy, and deep breathing. These activities promote recovery and improve outcomes. These goals are best established with coordination between physicians, nursing staff, patient, family member, and other health care providers involved in the patient treatments and recovery.4 One dimension of the plan is to establish a tolerable and acceptable pain level during these activities such as physical therapy or dressing changes. Knowledge of the patient pain history is critical to create effective pain management plan for the current hospitalization or home recovery period.
Patient Realistic Expectations for Acute Pain Management
Patient expectations can be a difficult concept to quantify—but setting appropriate expectations plays an important role in patient outcomes, especially overall patient satisfaction with their overall surgical experience and pain control. Furthermore, the nature of patient expectations can sometimes be challenging to define but typically involves the patient’s anticipation of an event—such as an increase in joint function after surgery.5 Moreover, a gap in expectations often exist between the physician and the patient. Acknowledgment of this gap upfront, prior to surgery, may minimize the negative consequences of unmet expectations. Several factors such as age, gender, and health status can also influence a patient’s expectation for recovery after surgery.6 Health care provider awareness of these factors may also decrease may expedite and smooth the recovery leading to better overall patient satisfaction.
The Expectation Gap Between the Patient and Health Care Providers
Discrepancies between what patients and their doctors expect from medical treatment are welldocumented in the medical literature. Even on the basic understanding of what constitutes
“quality of life,” doctor and patient perceptions may significantly diverge. If quality of life issues and the potentially divergent perspectives are not acknowledged and integrated into the patient’s assessment, it can result in a lack of understanding about the efficacy of treatment or even lack of compliance.7 One study examined the expectation gap among joint replacement patients to understand its nature: 168 patients undergoing either a total hip or total knee replacement filled out a questionnaire regarding their expectations of how surgery would affect pain levels, function, and overall well-being. At the same time, their surgeons filled out an identical questionnaire about their own expectations for their patients. The study revealed a substantial gap between the expectations of these two groups, with 52.5% of the patients having expectations that exceeded that of their surgeon.5 One way to minimize this gap is a frank discussion between the surgeon and the patient ahead of the surgery including a thorough risk-benefit analysis of the procedure. During this meeting, the patient and the physician can collaboratively make an informed decision about whether surgery is the best choice for their individual needs. This process is time consuming but can help patients to create realistic expectations and decrease the risk of dissatisfaction after surgery.8 Other ways may help to decrease the expectation gap is to use psychological interventions. In one study, patients undergoing cardiac surgery underwent a psychology-based, presurgical intervention to help manage their expectations of surgery. Compared to the control group who did not undergo a presurgical intervention, these patients showed an increased recovery from their disability, an increased ability to return to work, and an increased mental quality of life.9
“quality of life,” doctor and patient perceptions may significantly diverge. If quality of life issues and the potentially divergent perspectives are not acknowledged and integrated into the patient’s assessment, it can result in a lack of understanding about the efficacy of treatment or even lack of compliance.7 One study examined the expectation gap among joint replacement patients to understand its nature: 168 patients undergoing either a total hip or total knee replacement filled out a questionnaire regarding their expectations of how surgery would affect pain levels, function, and overall well-being. At the same time, their surgeons filled out an identical questionnaire about their own expectations for their patients. The study revealed a substantial gap between the expectations of these two groups, with 52.5% of the patients having expectations that exceeded that of their surgeon.5 One way to minimize this gap is a frank discussion between the surgeon and the patient ahead of the surgery including a thorough risk-benefit analysis of the procedure. During this meeting, the patient and the physician can collaboratively make an informed decision about whether surgery is the best choice for their individual needs. This process is time consuming but can help patients to create realistic expectations and decrease the risk of dissatisfaction after surgery.8 Other ways may help to decrease the expectation gap is to use psychological interventions. In one study, patients undergoing cardiac surgery underwent a psychology-based, presurgical intervention to help manage their expectations of surgery. Compared to the control group who did not undergo a presurgical intervention, these patients showed an increased recovery from their disability, an increased ability to return to work, and an increased mental quality of life.9